Their Son Could Die by Age 10 Without a Cure for His Rare Disease. They're Fundraising Against the Clock. Nov 7 Written by Lisa Nu When Jack regressed, his parents took him to a neurologist. Genetic testing revealed he had infantile neuroaxonal dystrophy, which has no treatment or cure.Read more here Lisa Nu Previous Previous Big pharma won’t help, so these N.J. families are finding a cure for their kids’ disease themselves Next Next Our baby was totally healthy until 8 months…
Their Son Could Die by Age 10 Without a Cure for His Rare Disease. They're Fundraising Against the Clock. Nov 7 Written by Lisa Nu When Jack regressed, his parents took him to a neurologist. Genetic testing revealed he had infantile neuroaxonal dystrophy, which has no treatment or cure.Read more here Lisa Nu