Jack’s Miracle Mission to Find a Treatment for Terminal Genetic Disorder, INAD

Jack was also recently diagnosed with Infantile Neuroaxonal Dystrophy (INAD), a genetic nervous system disorder. On July 2, Kelsey and Tim, Jack’s parents, learned their son has a mutated PLA2G6 gene through genetic testing ordered by his neurologist. 

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Race against time: ‘Jack’s Miracle Mission’ aims to support children with progressive disease

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Big pharma won’t help, so these N.J. families are finding a cure for their kids’ disease themselves